tag:blogger.com,1999:blog-3848169887881858510.post1393964273033303517..comments2023-05-16T04:55:08.299-07:00Comments on Me and My Boys: Worthy and WonderfulJen Currierhttp://www.blogger.com/profile/08771925085762398153noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-3848169887881858510.post-50938517347510283942012-04-06T05:35:53.312-07:002012-04-06T05:35:53.312-07:00Plus in reality the whole indepence issue is myth....Plus in reality the whole indepence issue is myth. We are social beings and our societY here in the USA s designed in a way that as we age we do rely on others for support. SO my new view of dependence is really much clearer now as I ponder this lawsuit--we all need regular help by age 65 or 70 so the extra assistance for a child or sibling with DS is only a limited period--from post-college to middle age! Not a short timeframe but healthy families typically have strong bonding & help each other Foster and maintain assistance & togetherness anyway!!!!?! <br /><br />I'm sure My Rambling thoughts Aren't translating but DS might be viewed a safeguard of sorts to promote & keep families in Healthy relationships or to FIND healthy connections for the long run!!<br /><br />Amazing cruising story, very very exciting and be sure to get fun videos because you never know how long or short these development spurts are--he could be walking soo soo soon. I am sorry about the school but keeping fingers crossed and hopefull that he gets is very soon if not by school time. I want to hear lots more, I know other families at that school AND WE NEED ONE in the south bay ASAP!!<br /><br />I love Christians commentary on Es ABILITIES. Yes, heres what he CAN DO. Here's what he's learned. Smile and keep striving to add and experience new things as you can. A snow goose chase is fun and that's one of the cutest snowmen & snow kids ever. <br /><br />Do not let your OBs comments sway you. You are convincing and I bet you CAN have & maintain a gentle manner that would suit that situation with poise & grace (despite frustration if you face ignorance from Educated professionals). Offer to meet with the other doctors. Use the lawsuit as the REASON & proof that the DS community Needs this book on their table. So lawsuits don't happen. <br /><br />I was at my OB in October after my sons birth and the whole reception area had streamers & banners about breat cancer awareness month. It is also DS awareness month so I pictured the I'm Down with You book along with a quick poster or minor pretty fan fair or maybe the baby book or Gifts also -- you are the decorator, send US tips and offer to set it up for them next October in your OBs office. Or take a pic of a sample set up & I'll help broadcast it online too, whether your office is keen on the idea or not. Get the book to other areas like therapy centers churches or spec needs book havens at regional centers....Hmmmm <br /><br />Ask WHAT they are giving to people who take screening tests. I think anyone taking that blood test MaterniT21 or whatever it's called should be handed the www.downsyndromepregancy.com brochure or link at a minimum. <br /><br />Hang in there and thanks--you are incredible and incredibly generous & also soo sweet to share your thoughts bravely. I'd be in hiding for more than three weeks after the news AGAIN about the loss of a good friend. But we dont have control over much, we can guide our way and choose plenty Of options along the way but we must keep going somehow! And you find a way & do it & manage to help brighten the path for many others, especially sharing yout passions like ballet & pArTIeS!!!Phttps://www.blogger.com/profile/16301340414658686677noreply@blogger.comtag:blogger.com,1999:blog-3848169887881858510.post-89880987347533620772012-04-06T05:10:06.606-07:002012-04-06T05:10:06.606-07:00The interesting thing about lawsuits is that these...The interesting thing about lawsuits is that these big judgements are typically reduced LOTS on appeal or have a Private final settlement amount negotiated (that's lower) which is NOT hyped and made public because it's not exciting to have the amount lowered. As a group we need to publicize any reduction ourselves LOTS and do what we can to support it getting revised wherever we can.<br /><br /> I'm more taken aback that our society would ALLOW a value to be placed on a condition--not one CAUSED by an accident or procedural error but ANY test is subject to human error & some were chatting about the child and testing being inaccurate because the child was Mosaic DS - so not ever cell has the extra chromosome. It's just part of the percentage that does NOT test accurately. I am not sure if that's truth or a guess on the part of the rumor mill. <br /><br />I still need to offer assistance if possible (not my area but as an insurance/numbers person I can AND HAVE thought of LOTS of stress-reducing and cost SAVINGS involved in raising a child with DS since that news story broke--addiction to drugs? Screwing up yout life in general? Not talking to your parents for extended periods?Phttps://www.blogger.com/profile/16301340414658686677noreply@blogger.comtag:blogger.com,1999:blog-3848169887881858510.post-21361740684953994882012-04-04T07:16:25.570-07:002012-04-04T07:16:25.570-07:00Wow, where do I start? So many fantastic things, ...Wow, where do I start? So many fantastic things, not the least of which is your amazing spontaneity!! Love that, and I'm so happy you all found snow. Looks like you found more than we in the mid-Atlantic did this year, sadly. LOL<br /><br />Yeah, what the doctor said is puzzling - why *wouldn't* you know a lot about Down syndrome? Weird. <br /><br />That lawsuit in Portland has weighed heavy on me. It is very, very concerning, and I hope that couple and the judge feel the weight of the Pandora's box they've just opened...<br /><br />Sorry about your friend's health concerns, thrilled about Elijah's cruising and Christian's bike riding, even more thrilled to see this new post from you. :-)Beccahttps://www.blogger.com/profile/14963099760885760598noreply@blogger.comtag:blogger.com,1999:blog-3848169887881858510.post-83710768774236195342012-04-03T16:03:01.861-07:002012-04-03T16:03:01.861-07:00Thanks for being such a great, SPONTANEOUS, friend...Thanks for being such a great, SPONTANEOUS, friend...and a much needed listener on what could have been a rough day. As usual, my admiration for you knows no bounds. Love you.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3848169887881858510.post-42613775103909688662012-04-03T12:47:06.505-07:002012-04-03T12:47:06.505-07:00I think stream of consciousness suits you well. Be...I think stream of consciousness suits you well. Beautiful, moving, well said post. So happy for all of you I couldn't help but get a bit weepy. Xoxotheahttp://www.theflyingcaterpillar.comnoreply@blogger.com