tag:blogger.com,1999:blog-3848169887881858510.post1189444728059072516..comments2023-05-16T04:55:08.299-07:00Comments on Me and My Boys: Hot PotatoJen Currierhttp://www.blogger.com/profile/08771925085762398153noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-3848169887881858510.post-42356468570180079132011-11-20T04:42:21.866-08:002011-11-20T04:42:21.866-08:00Be sure to run those comments by Joe the PT from c...Be sure to run those comments by Joe the PT from club 21! He's at home with his baby now so might not mind you bugging him before his next scheduled time there and who says your schedule will get you there!Phttps://www.blogger.com/profile/16301340414658686677noreply@blogger.comtag:blogger.com,1999:blog-3848169887881858510.post-80382597845369993422011-11-20T04:39:54.067-08:002011-11-20T04:39:54.067-08:00Couldn't the shoving the food away be behavior...Couldn't the shoving the food away be behavioral? If it was sensitivity I think he'd avoid touching it! It must be part of the defensiveness but less extreme than complete avoidance maybe. All kids toss the food some--it's FUN! I think grasping that if you toss it you don't get to eat it might take more time to process for our kiddies and besides, mommy gives me it anyway.<br /><br />I think the arm crawling is also a huge part just muscle weakness too-how can they separately identify weakness verse aversion? He loved the beach and grass too right? I'm sure it's not wrong completely but our upper bodies are heavy compared to tiny arm muscles! <br /><br />Benji did bear crawl only eventually and certainly LOCKED his legs for artificial strength and I bet his arms too. His core and upper body strength are poor and he's far from running I think despite walking for almost a year. <br /><br />The speech therapist today at DSALA had us lift our legs, shift our hips forward/lean forward with rounded shoulders and try to pretend to eat. It's HARD to both swallow and raise your arms. Be sure his feet are supported and flat on something - use a stack of books or something she suggested!Phttps://www.blogger.com/profile/16301340414658686677noreply@blogger.comtag:blogger.com,1999:blog-3848169887881858510.post-53470483013863783202011-10-13T08:28:47.347-07:002011-10-13T08:28:47.347-07:00I love your honesty. I feel the same way about so...I love your honesty. I feel the same way about some of those things. And you really hit the nail on the head about being in public and showing to everyone that Down syndrome is not a bad thing, not a death sentence to either parent or child. I always found that *my* attitude in public with Samantha is what colored all of our interactions - all completely positive. I think we've changed a lot of minds with that alone. <br /><br />Btw, about self-feeding...ugh, we had a tough time with Samantha as well. Not that she wouldn't self-feed, but that she a) wouldn't chew until she was 2 (we had to cut things into teeny tiny non-chokable bits and are *still* nervous about it, even though she's proven over the last 3 years that she chews all the time now), and b) wouldn't try anything new. She still won't. Totally limited palate, which can be a real nuisance. *sigh* Hang in there!Beccahttps://www.blogger.com/profile/14963099760885760598noreply@blogger.comtag:blogger.com,1999:blog-3848169887881858510.post-51191600756759310012011-10-13T08:14:09.581-07:002011-10-13T08:14:09.581-07:00Well said. I prefer unfiltered emotion. As someo...Well said. I prefer unfiltered emotion. As someone who has spent her year trying to live out loud, I say emotional censorship is overrated and generally detrimental to your emotional well being. Maybe this isn't the forum to address the friend who can't read your blog. But if you are truly bothered, then you owe it to both of you to chat it out.<br /><br />As for Elijah....I couldn't help but think of my race when reading your words. In the end we all run our own race the only way we know how. Sometimes it's pretty, sometimes it's a hot mess, but whatever happens along the way, it won't take away from the overwhelming feeling of triumph when we finally reach the end. The half marathoner I passed on my final stretch will feel no less joy. <br /><br />He'll eat cake. I bet it will taste AMAZING for everyone who witnesses it. xoxoxo.theahttp://theflyingcaterpillar.comnoreply@blogger.comtag:blogger.com,1999:blog-3848169887881858510.post-251177942599205082011-10-13T07:27:04.635-07:002011-10-13T07:27:04.635-07:00Your honesty is what draws me to your blog...I kee...Your honesty is what draws me to your blog...I keep reading it because I can relate to it.JChttps://www.blogger.com/profile/16040699928110444013noreply@blogger.comtag:blogger.com,1999:blog-3848169887881858510.post-9181750682768109622011-10-12T23:17:53.580-07:002011-10-12T23:17:53.580-07:00Thanks for sharing, Jen.
(I blogged something simi...Thanks for sharing, Jen.<br />(I blogged something similar on Tuesday)Jenniehttps://www.blogger.com/profile/06617791426447246761noreply@blogger.com